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Read more about the continued support for people in the shielding group in Scotland. If you've benefited from this advice today, if you can, please make a small donation to help ensure we can give you the support you need now and in the future. The government has also created guidance for people to help look after their mental wellbeing during the COVID-19 pandemic. Read our detailed information about what you should do if you live with an ILD. 2. Please confirm that we can keep in touch with you by email, We'll take good care of your personal info and you can update the way we contact you at any time - check out our privacy policy at blf.org.uk/our-privacy-policy to find out more. Our helpline is here to answer questions you may have and listen to your concerns. The number for this helpline is 0800 111 4000. If you have a fever or a new continuous cough or a loss or changed sense of normal small or taste, contact the NHS 111 online coronavirus service. For example, Long Acting Beta Agonists and Long Acting Anti-Muscarinic Antagonists. Coronavirus vaccine. The information is updated regularly when new guidance is published by the NHS, Public Health England and the UK Government. This information uses the best available medical evidence and was produced with the support of people living with lung conditions. Not everyone with Crohn's or Colitis will have an increased risk of complications from coronavirus, but some may need to take extra precautions. People with rare diseases and inborn errors of metabolism that significantly increase the risk of infections (such as SCID, homozygous sickle cell). All 4 nations have agreed to relax social restrictions over the Christmas period, from 23 – 27 December. Most people with severe COPD have got a shielding letter advising them to follow social shielding advice. If you live with COPD, you are at a higher risk of severe complications if you get COVID-19. The Scottish government is also developing a service that will tell you your risk of being exposed to the virus in your local area. Make sure you do this in a well-ventilated room, and away from other members of your household. We cannot reply to comments left on this form. Your support can help us to continue being there for everyone who needs us. COVID-19 coronavirus: what is shielding and who needs it? Details of the support that’s available to you will be in the letter you’ve been sent by the government. Coronavirus and living with a lung condition, Guidance for the clinically extremely vulnerable. This is called advance care planning. But it isn’t the only factor that increases your risk. This should help you to have the best possible lung function and the least risk of getting an acute exacerbation or flare-up. Cancer, asthma and organ transplant patients were dropped from the Government's coronavirus shielding list in an abrupt text message, it emerged last night.. Coronavirus vaccine: what people with lung conditions need to know. Things that are important to you are more likely to happen if you can share your wishes in advance. It is important to follow the advice from the NHS and your healthcare team. These people belong to a group described as ‘clinically extremely vulnerable’. If you’d like to see our references get in touch. As the UK's leading respiratory charity, now more than ever before people need our help, yet COVID-19 has devastated our ability to raise vital funds. Get support to stop smoking from your health care professional or get in touch directly with NHS stop smoking services, who can help you by phone, video or email. How many people will be there? For some conditions, for example sarcoidosis, you shouldn’t take a vitamin D supplement unless it’s specifically recommended for you by your specialist. What should people with a lung condition do now? Take a look at our COVID-19 vaccine FAQ, which will help answer some of the questions you might have. If you’re concerned about your health and safety in the workplace, you should speak with your employer in the first instance. Don’t take your rescue pack if you only have these symptoms. For more detail on this, read the government information on coronavirus and schools. If you live with someone who is clinically extremely vulnerable but you still need to go into work, take a look at this guidance from the Cystic Fibrosis Trust. Shielding updates – advice for clinically extremely vulnerable people. You might want to ask: And remember, if you don’t feel comfortable forming a Christmas bubble, don’t feel pressured to. How is pulmonary hypertension diagnosed and treated in children? We should all be doing what we can to prevent the spread of coronavirus to help protect ourselves and others. Some people with long-term lung conditions are at extremely high risk of severe illness from coronavirus. In this situation, doctors will need to give you extra steroids when treating you. What is pneumonia, symptoms and diagnosis, Acute respiratory distress syndrome (ARDS), Submit a review of our health information, Stories about living with a lung condition, Positions for obstructive lung conditions, Positions for restrictive lung conditions. Last medically reviewed: December 2020. People with severe long-term lung conditions in this group include people with: Current NHS medical records do not hold perfect data to specifically identify how severe your COPD is. The National Volunteer Prescription Delivery Scheme ended on 30 September, but if you need help getting your medicines you should speak to your pharmacy. If you think there is a question missing, please fill in the form at the bottom of the page. According to a 2020 report of 140 people with COVID-19, having COPD does not make people any more likely to contract the SARS-CoV-2 virus. During the first lockdown, certain people were advised to take extra steps - or shield - to avoid contracting Covid-19, because they were considered more at risk of needing hospital treatment. Registered charity in England and Wales (326730), Scotland (SC038415) and the Isle of Man (1177). GPs and hospital clinics have identified people with severe COPD who have been missed by the medication approach to add them to the list. You might get texts or emails from them, get electronic prescriptions and be offered telephone or video calls instead of face-to-face appointments. For the most up to date advice on face masks, including who should be wearing them and where, take a look at our page on face coverings. This is a card that lets health care professionals know you take steroids at a high dose. This is called shielding. We are very aware of how worrying a time this is for everyone. You might have heard that in England, people on the shielded patient list will be offered a free winter supply of vitamin D. If you live in England and are clinically extremely vulnerable, you’ll be sent a letter offering you the supplements. But for some people, the risk is higher. The huge amounts of information in circulation can sometimes see… How big is the space? As the UK's leading respiratory charity, now more than ever before people need our help, yet COVID-19 has devastated our ability to raise vital funds. What is the guidance for CEV people across the UK? You can read more about the five-level system and what it means for you on the gov.scot website. Or you could use this pulmonary rehabilitation pack that includes exercise and education. If you live with chronic obstructive pulmonary disease (COPD), you already think a lot about your breathing and your lung health.COVID-19, the respiratory illness that the new coronavirus … Your living with a lung condition stories, Information for health care professionals, Stoptober: the 28-day stop smoking challenge, Putting on your Take Steps sponsored walk, Taking the first step: Millets’ guide to walking, Big Breakfast for schools - activity ideas, Top tips for organising a brilliant charity quiz, Incredible support from trusts and foundations, Gwybodaeth yng Nghymraeg / Welsh language health information, The Asthma UK and British Lung Foundation Partnership, Why you'll love working with the British Lung Foundation, Thank you for supporting the British Lung Foundation helpline, Read why Dr Noel Baxter, a GP, suggests you should think about. Will door handles and surfaces be cleaned regularly? Our medical experts answer questions about how the Covid-19 coronavirus can affect people with heart disease. request access to a priority supermarket delivery slot, tell your council if you need support, especially if you are unable to arrange this yourself or with the help of friends, family or other support networks, collecting food, medicine and other essential supplies. If you are on a high dose of steroid you should be given a steroid card from your GP. The UK government says that people with severe COPD (also called emphysema or chronic bronchitis) need to go into something called shielding to protect themselves from coronavirus (COVID-19). You should also clean things like face masks, mouth pieces, spacers, nebulisers and peak flow meters regularly with washing-up liquid and following the manufacturer’s instructions. Coronavirus (COVID-19) can make anyone seriously ill. Registered office: 18 Mansell Street, London, E1 8AA. About 1.5 million people across the country will be getting, or have received, a letter asking them to stay at home for 12 weeks - a strategy called 'shielding'. You can also take a look at our advice on dealing with your mental wellbeing if you have a lung condition and the Mental Health Foundation’s advice about coping at this time. This review was informed by NICE’s definition of severe COPD, which includes: Read more about what you should do if you live with COPD. If you live with COPD, you are at a higher risk of severe complications if you get COVID-19. If you have to use public transport, consider travelling outside of peak hours to avoid the amount of people you come into contact with. What is pneumonia, symptoms and diagnosis, Acute respiratory distress syndrome (ARDS), Submit a review of our health information, Stories about living with a lung condition, Positions for obstructive lung conditions, Positions for restrictive lung conditions. You can find out which tier you are in on the government website. We desperately need support to continue when shielding is paused. You can change your mind at any time. The revised shielding guidance is not as strict as it was earlier in the year and you can read more about the measures on the government website. It remains essential to wash your hands often with soap and warm water for at least 20 seconds. As well as a steroid inhaler, this must include two long acting preventers. detailed information about what you should do if you live with an ILD. This usually means being on several different inhaler medications in the last year. Coronavirus shielding changes: New rules from today as people can finally hug Big changes are coming for the 2.2million people in England who are shielding - … Coronavirus (COVID-19): shielding - a way forward for Scotland Introduction Supporting files. People with a diagnosis of pulmonary hypertension are regarded as vulnerable. It will also reduce the risk of flare-ups, also called acute exacerbations, of your symptoms. Forming a Christmas bubble is a personal decision. Registered office: 18 Mansell Street, London, E1 8AA. We know you might be feeling anxious about what the next few months might look like. This advice is for people who have received a letter from the NHS or their GP saying they're at … Ask them to wait for a few minutes before joining you in that room. COVID-19 results from an infection by a respiratory virus (coronavirus) that can lead to inflammation and injury within the lungs. Across all tiers, the guidance for people in the clinically extremely vulnerable category is: Within each tier, there is detailed  guidance for people who fall into the clinically extremely vulnerable category, relating to socialising, going into work, shopping and travel. The government will be sending letters to 1.5 million people in England urging them to self-isolate for an extended period amid warnings the coronavirus outbreak is "accelerating”. It’s important you follow social distancing advice particularly carefully and continue to self-manage your condition well. If you are in any doubt if you should be taking a supplement or not, speak to your health care professional for their advice. New guidance for people with Crohn’s and Colitis on level of risk of complications from COVID-19, and what you should do as a result. Introduction This guidance has been updated to support the clinically extremely vulnerable in protecting themselves from exposure to coronavirus (COVID-19). She’s been shielding since March. Guidance for the clinically extremely vulnerable (the shielding group), Coronavirus and living with a lung condition, Guidance for the clinically extremely vulnerable. People who have been shielding in Scotland can continue to get updates from the SMS Shielding Service. For example, some people develop severe bronchiectasis after extensive active TB and in that case, you are advised to practise social shielding, following the current guidance on severe bronchiectasis. We’d love to keep in touch to tell you about our work, our fundraising activities and other ways you can get involved. But if you have COPD, covering your mouth and nose can be challenging. It’s important you follow social distancing advice particularly carefully and continue to self-manage your condition well. Idiopathic pulmonary fibrosis (IPF) is a rare lung disease that causes scar tissue to grow inside your lungs. But if your lungs are extensively damaged or inflamed as a result of active TB or past TB, you may be more at risk of developing a chest infection after a coronavirus infection. Children who live with parents or siblings who are shielding can return to school if they wish, but should speak to the shielded person’s sp… If you do decide to form a Christmas bubble, you should encourage the other people within your bubble to be mindful of your increased risk and to be extra vigilant in the days before you get together. Talk to your health care professional on the phone or by video if you’re feeling anxious or depressed. Anyone who has a weakened immune system is more at risk of being seriously ill if they get coronavirus (COVID-19). This includes: In some people, this can progress to a serious illness. Respiratory crisis in these patients may be a result of viral pneumonia, airways disease worsening due to the viral trigger effect or other known triggers for airways disease worsening How is pulmonary hypertension diagnosed and treated in children? People with a range of long-term lung conditions are in this group if their condition is severe. As a charity, British Lung Foundation provides free health advice to millions of people through our website and our specialist helpline - a team dedicated to offering life-changing advice over the phone. Read on for updates on the efforts to reopen states, why people with COPD might have to wait longer and policy issues that we are following. If you feel you can, you might want to discuss with those closest to you, and your health care professional, any wishes you have for your future care. If you live in a tier 3 area and don’t have someone you can rely on to go shopping for you, you can register for support on the government website. Will it be possible to stay 2 metres away from people I don’t normally live with? If you have health concerns or need clinical advice, call our helpline on 03000 030 555 between 9am and 5pm on a weekday or email them. Scotland has now entered a new five-level system of coronavirus restrictions. Vaccination helps you build immunity to the virus, so your body will stop the infection more easily. If you get the usual signs and symptoms of a flare-up: increased breathlessness, you produce more sputum and there’s a change in its colour and consistency, and you cough more, follow your flare-up plan, including taking antibiotics and steroids if you have them at home. You can watch our exercise videos or download our exercise handbook to exercise safely at home. Read more about keeping well in the winter and why you should get the flu vaccine this year. You might be eligible to be furloughed – we would encourage you to talk to your employer to discuss your options. We would also like to express our support and gratitude to all the health- and key workers out there doing an amazing job to keep us safe in our time of need. This makes it difficult to give blanket advice about the level of risk from having a lung condition. How can I improve the air quality in my home? Most people with severe COPD have got a shielding letter advising them to follow social shielding advice. How can I improve the air quality in my home? You can read more about this on our dedicated shielding page. What’s the difference between self-isolation, social distancing and social shielding? People who’ve had a prescription for Roflumilast most recently in November 2019 or December 2019. meet any of the criteria that are on the list under COPD, are taking long-term antibiotics such as inhaled antibiotics or macrolides, have 3 or more flare-ups or exacerbations a year, Mycophenolate Mofetil and Mycophenolate Sodium, Having in the last 6 months received intravenous Cyclophosphamide, Rituximab or Infliximab, you have to stop walking after 100m or so because of breathlessness, even at your own pace, you have had to be admitted to hospital in the last year because of an acute attack of the lung condition. It gives tips on things you should do when you come in from home. How at risk am I of becoming seriously ill with coronavirus? Dr. Noah Greenspan, DPT, CCS, EMT-B, director of the Pulmonary Wellness & Rehabilitation Center in NYC and founder of the Pulmonary Wellness Foundation, led a webinar for the Foundation on Feb. 29 called “Coronavirus: What Every Pulmonary Patient … Make sure you always carry your steroid card with you. This will only apply to some Tier 3 areas, and you will be written to if you are advised to shield again. The first approved COVID-19 vaccine is being rolled out across the UK. There are 2 levels of higher risk: high risk (clinically extremely vulnerable) We will continue to make sure the voices of our supporters are heard, so everyone gets the support they need. 3. People with severe COPD. We use your comments to improve our information. Would you like to keep in touch by email? Find out how we produce our information. Do not share your inhalers with anyone else. In Wales, Northern Ireland and Scotland, people in the shielding group can go into work providing your workplace is COVID-safe. Flu can be a serious illness, especially if you’re living with a lung condition. We’re working hard to get more information about the coronavirus (COVID-19) vaccine to you as quickly as possible. This is applicable for all tiers. Who should be in the clinically extremely vulnerable group? Registered charity in England and Wales (326730), Scotland (SC038415) and the Isle of Man (1177). Please check back regularly – we will be updating this page as soon as new information is available. If you need support and don’t have anyone to help you, you should speak to your local council. If you’re unsure if you’re child still falls into this category, speak to your GP or hospital clinician. In an emergency, call 999 if you are seriously ill. Will it be possible to keep it well ventilated? Check with your oxygen supplier to see how it will deal with COVID-19. Everyone with pulmonary fibrosis and other types of interstitial disease is regarded as vulnerable, and should have received a letter from their specialist or GP. If you smoke, stopping smoking now will reduce your risk from getting very unwell if you get coronavirus. However, there are restrictions in place for everyone to follow to stop the spread of coronavirus. If you live in a level 4 area in Scotland and your employer cannot make your workplace COVID-safe, you can get a letter similar to a fit note for as long as your area is under level 4 restrictions. As a charity, British Lung Foundation provides free health advice to millions of people through our website and our specialist helpline - a team dedicated to offering life-changing advice over the phone. This is to avoid them breathing in any droplets in the air from your breaths out. This is because there are good records of prescriptions that people have received. If you’re feeling low, please take a look at our information on dealing with your mental health while living with a lung condition. In places where there is a very high risk from coronavirus, you may get a letter advising you to follow stricter advice. Whatever tier you’re in, it’s important you get the care you need to keep you safe and well. Ask your health care professional if you are unsure. As the COVID-19 pandemic continues to surge, the U.S. Centers for Disease Control and Prevention recommends people wear face masks in public. These could be prescribed as either 3 separate medicines or combinations of single and dual or combination medicines or as triple therapy. What should people who are clinically extremely vulnerable (CEV) do? This includes: If you’re clinically extremely vulnerable, you should follow the government guidance stringently as you may be at risk of severe illness if you catch coronavirus. If you have received a letter and have been prescribed either triple therapy or Roflumilast and think your COPD is not severe, talk to your GP or hospital specialist. Others may get a letter following reviews by hospital specialists and GPs. This data shows open data about the shielded patient list, and how it has been used. It’s reasonable to ask ahead about arrangements, to help your decision. At this unprecedented time, we would like to extend our thoughts to everyone in the UK who has been directly affected by COVID-19 and to all of us who are grappling to come to terms with this rapidly changing situation. If you’re struggling and need support, you can contact the COVID-19 Community Helpline: People in the shielding group in Wales can still benefit from priority supermarket delivery slots if they don’t feel comfortable going to the shops. You should only go into work if you cannot work from home and your employer has made your workplace COVID-safe. Find out how we produce our information. Reducing your risk of catching COVID-19. You can also get support from these organisations: To understand more about your COVID-19 risk, including advice on how you can reduce the risk of catching the virus, take a look at this webpage. Evidence has shown there is a very low risk of children becoming seriously ill from COVID-19, even if they have an existing health condition. Each tier has different restrictions and guidance for what you can and cannot do. From 1 June 2020, nurseries in England will reopen and children in certain year groups will be allowed back to school. In the last week, the pace of change of advice about COVID-19 - commonly just called coronavirus - has ramped up. 1. Download 15 page PDF. You can also register for support from your local COVID-19 Mutual Aid Group. 4. People who have been shielding in Scotland can continue to get updates from the SMS Shielding Service. Asthma UK and British Lung Foundation Partnership is a company limited by guarantee 01863614 (England and Wales). For more information on Scotland’s COVID forecasting service, visit the government’s website. If you've benefited from this advice today, if you can, please make a small donation to help ensure we can give you the support you need now and in the future. Carol has emphysema, a form of chronic obstructive pulmonary disease (COPD). People in this group will not be expected to go to school or college. Severe COPD means that: You are too breathless to walk 100 yards Your health care professional will not be able to give you more than a month’s supply of your medication during these times. Lung functioning testing and assessments for treatments such as oxygen therapy may be postponed due to the current priorities. If you live in one of the worst affected local areas, you might be advised to shield again, but this time it will be for a limited period of time. Shielding has been paused in Wales and Northern Ireland. If you lose it, you can get a replacement from your pharmacy or GP. We’d love to keep in touch to tell you about our work, our fundraising activities and other ways you can get involved. The safest way to celebrate Christmas this year is with your household or existing support bubble. For inhaled steroids a high dose is defined as more than 1000 micrograms of beclomethasone or equivalent. flare-ups, also called acute exacerbations, talking to your family in the current situation, technology can help you manage your health care in our guide. Try to weigh up the benefits of forming a Christmas bubble against the likelihood of catching the virus. Would you like to keep in touch by email? These include: The groups listed above cover most lung conditions. If your condition is not included or you are not sure, have a look at these criteria: If you meet any of these then it is likely your condition makes you especially vulnerable to coronavirus. It is useful in emergency situations, as your body may not produce enough natural steroids to help you deal with illness or injury. Congenital pulmonary airway malformation (CPAM), Non-tuberculous mycobacterial infection (NTM), Connective tissue and autoimmune diseases, Pulmonary haemorrhage (bleeding into the lung). Within each level there is specific guidance for people on the shielded patient list. Maintain at least a 30-day supply of your prescribed medications. Coronavirus shielded patient list open data set, England. This information uses the best available medical evidence and was produced with the support of people living with lung conditions. We use your comments to improve our information. It’s important to ensure that your routine oxygen needs will be met. Having a long-term lung condition is one of them. Due for review: December 2020. If you'd like to be kept updated, please enter a valid email address. We know this might cause anxiety if a parent or grandparent is shielding. If you are on regular steroid tablets you should keep taking them as prescribed. 4. However, most people infected with the virus will not become gravely ill. The best defence against complications of COVID-19 is for your lung condition to be as well controlled as possible. Do this in a room that ’ s well ventilated and away from other members of symptoms. As vulnerable rescue pack if you ’ re feeling anxious or depressed face-to-face.. Breaths out 100 yards 1 when shielding is paused guidance for people on the government information Scotland... Updated, please fill in the workplace, you are at a high dose to stay metres... What it might mean for people in the shielding group can go into work, but only your! 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